Survivors & families
Share what meaningful recovery looks like
Contribute through surveys, interviews, structured feedback, or future advisory opportunities.
Recovery Insights Lab · Research direction
Survivor-defined recovery outcomes
What matters to survivors that current recovery measures may miss?
The research question
Are we measuring the parts of recovery that people are actually trying to regain?
A person may improve on a clinical measure and still struggle to return to work, parent a child, manage daily life, rebuild relationships, or take part in the community.
This work asks where survivor-defined priorities align with existing recovery measures—and where important parts of recovery remain invisible.
Research model
Survivor voice at the center of recovery research
The visual shows what people say matters, how those priorities are compared with existing measures, and how better questions can move forward for testing.
Contribute to this work
Recovery Insights Lab brings together lived experience, clinical knowledge, and community expertise. We welcome people and organizations who can help make this work more useful and grounded.
Clinicians & rehabilitation programs
Help connect questions to practice
Partner on follow-up, clinical relevance, feasibility, and testing in rehabilitation or neurorecovery settings.
Researchers & community partners
Help strengthen the framework
Contribute measurement expertise, survivor engagement experience, or knowledge of longer-term recovery and participation.
What this work will produce
A more meaningful way to measure recovery
A survivor-informed recovery framework that shows where existing measures align with lived priorities, where important gaps remain, and which questions should move forward for testing in clinical research and follow-up.